If you know about Liver Disease – Hepatitis, MASLD/MASH, ALD, PBC – it’s likely because of what we call here at LiverRight “The Tremendous Twenty.”
There are 20 passionate, proud & powerful ADVOCACY organizations in the USA and around the world that have shone a bright hot light on a Wildly Ignored Organ: The Liver.
Every Thursday, we spotlight one of the bold pioneers, and you can watch the total list unfold here–
Their launch press release from November of 2023 says it all–
FLF and Sober Liver have identified five areas where our combined efforts will focus. These areas represent a comprehensive approach to tackling liver diseases, particularly Alcohol-Associated Liver Diseases (ALDs) and MetALD, and aim to leverage the strengths of both organizations for maximum impact.
1. Integration of Sober Liver as a restricted program within FLF: Sober Liver will be integrated into FLF as a distinct, restricted program. This integration is designed to merge the specialized strengths of both organizations, significantly enhancing the support and care provided to individuals and care partners affected by ALDs, MetALD, including those who are pre- and post-transplant, with or without liver cancers
2. Development of tailored initiatives: The collaboration will focus on creating specific projects and programs to aid those recovering from alcohol use disorders.
3. Increased awareness and education: A joint effort will be made to educate the public about ALDs and MetALD and to provide resources for at-risk populations and healthcare professionals.
4. Strengthen patient advocacy: The collaboration will intensify advocacy for better diagnosis, treatment, and care for patients with ALDs and MetALD.
5. Elevating Patient and Community Voices in Collaborative Networks: This collaboration is committed to broadening its influence by not only collaborating with healthcare providers and industry partners but also by actively involving patient groups and community voices in shaping clinical trials and study designs.
