Advocacy Thursday: PFIC

If you know about Liver Disease – Hepatitis, MASLD/MASH, ALD, PBC – it’s likely because of what we call here at LiverRight “The Tremendous Twenty.”

There are 20 passionate, proud & powerful ADVOCACY organizations in the USA and around the world that have shone a bright hot light on a Wildly Ignored Organ: The Liver.

Every Thursday, we spotlight one of the bold pioneers,
and you can watch the total list unfold here–

THE 20 LEADING ADVOCACY ICONS IN LIVER DISEASE

1. The PBC Foundation
   
2. Hepatitis B Foundation
   
3. Blue Faery
   
4. Coalition for Global Hepatitis Elimination (CGHE) 
   
5. PFIC Advocacy: “Our vision for PFIC Network is to inspire hope in the PFIC community.
   
   
   
   Our mission is to improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, PFIC.
   
   We value connection, education, and support to empower the community. We value building productive partnerships between patients/caregivers, researchers, clinicians, and industry to stimulate research focused on outcomes most meaningful to PFIC families. We value providing relevant information for informed decision making, inclusivity, and collaboration. We value the patient, the family, their choices and their stories. We value every part of our rare disease community.”
   
   [and 14 more Advocacy Icons to come]