If you know about Liver Disease – Hepatitis, MASLD/MASH, ALD, PBC – it’s likely because of what we call here at LiverRight “The Tremendous Twenty.”
There are 20 passionate, proud & powerful ADVOCACY organizations in the USA and around the world that have shone a bright hot light on a Wildly Ignored Organ: The Liver.
Every Thursday, we spotlight one of the bold pioneers,
and you can watch the total list unfold here–
THE 20 ADVOCACY ICONS IN LIVER DISEASE
- The PBC Foundation
- Hepatitis B Foundation
- Blue Faery
- Next: Coalition for Global Hepatitis Elimination (CGHE)
[and 16 more Advocacy Icons to come]
ADVOCACY ICON: Blue Faery: The Adrienne Wilson Liver Cancer Association
FOUNDED IN: 2002
HQ IN: Birmingham, AL
KEY ADVOCATOR: Andrea Wilson Wilson
DESCRIBED:
Blue Faery’s Mission is to prevent, treat and cure primary liver cancer, specifically Hepatocellular Carcinoma, through research, education, and advocacy. Our work will improve the quality of life for HCC patients, support their caregivers and give them hope, information, and a voice.
RESEARCH
To accelerate the acquisition and application of scientific understanding and to advance the diagnosis, treatment, prevention, and cure of Hepatocellular Carcinoma.
To increase the scientific understanding of the correlation between hepatitis, lifestyle choices, and Hepatocellular Carcinoma.
To establish international alliances in a joint effort to find a cure for Hepatocellular Carcinoma.
To make clinical trials and treatment options available to all patients diagnosed with Hepatocellular Carcinoma regardless of age, gender, or ethnicity.
EDUCATION
To educate the public on the causes, symptoms, treatment options, and prevention of Hepatocellular Carcinoma through lectures and literature developed by the organization, as well as through the use of Adrienne Wilson’s name, likeness, personal story, and medical case history.
To educate the public on the correlation between hepatitis and Hepatocellular Carcinoma.
To educate the public on the other known causes of HCC, including Nonalcoholic Fatty Liver Disease (NAFLD) and Nonalcoholic Steatohepatitis (NASH) caused by obesity and lifestyle choices.
ADVOCACY
To increase influence with private and public organizations to achieve Blue Faery’s goals.
To increase awareness of Blue Faery among the general public in order to increase support for our mission and reach more people with the services we provide.
To facilitate contact among patients with Hepatocellular Carcinoma, their families, and healthcare providers for the purposes of support, exchange of knowledge, and participation in clinical trials.